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MEN1 (multiple endocrine neoplasia type 1): an inherited condition that causes tumors in the parathyroid glands, the pituitary and the pancreas, the signs, who should be tested, the tests, treatment, and genetic counseling
For anyone told they have, or might have, MEN1, for anyone whose parent, brother, sister or child has it, for anyone who has had more than one tumor of a hormone gland, and for the people who help them. It passes on, by name, what the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK, part of the NIH) says: what MEN1 is and the signs, gland by gland; who gets it, the gene, and the complications; how doctors find it, and who in the family should have the gene test; treatment, from regular checks to surgery and the medicines after; and genetic counseling. It builds the questions to ask and prints a card. Nothing is saved.
Right now
- Passing out, a seizure, or confusion that does not clear? NIDDK says MEN1 tumors in the pancreas can cause low blood sugar. Call 911 and say the person has MEN1 (ours).
- Vomiting blood, black or bloody stool, or a sudden very bad headache or sudden loss of sight? Call 911 (ours).
- At the end of your rope, or having thoughts of suicide? Call or text 988, any hour, free (ours).
More help
- The glands on this site: Primary hyperparathyroidism (high calcium) · Prolactinoma · Acromegaly · Heart, blood and hormones: find the right page.
- Around it: Kidney stones · Peptic ulcers · Caring for someone.
- For you: My medicines · Low-cost health care · Get ready for your appointment. In an emergency: Help right now (988, 911). All our free tools.
Your heart, blood pressure, blood sugar, thyroid or blood, and not sure this is the right page? The pages on this site for a heart attack or stroke, blood pressure, AFib, heart failure, cholesterol, diabetes and prediabetes, the thyroid, anemia, sickle cell and menopause, on one list.
Other guides on this site that go with this page
Free to read. We chose these ourselves; no professional did. Each guide was written with AI and has not been reviewed by a professional. They are general information, not advice.
- Zollinger-Ellison syndrome: tumors that make the stomach make too much acid, the ulcers, diarrhea and heartburn they cause, who gets it, the tests, and treatment: Zollinger-Ellison syndrome: tumors that make the stomach make too much acid, the ulcers, diarrhea and heartburn they cause, the tests, and treatment.
This page and its wording were written with AI (Claude) for Scarlet Beast (our AI policy). No doctor or nurse has reviewed it. The facts were read on October 22, 2026 on NIDDK’s (NIH) page Multiple Endocrine Neoplasia Type 1, every section, last reviewed in July 2020. Ours: the 911 and 988 lines; asking now what to do if blood sugar goes low; when to call the care team the same day or soon; keeping the results, the tumors and the surgeries on one page; asking before you stop or change a medicine; the questions to ask; the card; the links to our other pages; and the order of the steps. What we left out: its section on clinical trials, its references, its pictures, and the other pages it links to, which we did not read. It names no medicines, and neither do we. Nothing you tick or type here is saved or sent.